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 Welcome to my home page! |
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Welcome to my home page!
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Welcome to My Home Page! My mom and I are putting this website together to tell my story, update friends and family , and to educate people about Osteogenesis Imperfecta. My mommy hopes that this site will help another family the way that many of the other personal story sites have helped our family and that your life will be touched by me (my mommie's little ANGEL)! Thank you for stoping and please enjoy your visit here. |
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This is a picture of me in my new wheel chair. Im so happy to be able to sit up and look at everything. I like the tray too It helps me to play with my toys easier Thanks Tampa Shriners! Hi. Im Isabella Mae Hernandez. I was born on December 17,2004 by c-section with 12 fractures. I have a rare bone disease called Osteogeneisis Imperfecta (OI). OI causes me to fracture easily and to date I have healed from over 16 fractures. I am currently 20 months old. I weigh 10.7 pounds and im almost 23 inches long I live in Dade City Florida with my Mommy, Daddy, My big brothers Gregory and Felipe, and My big sister Jade Lynn. Link to my family pictures |
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When I was born the Doctors told my mommy that I would probably not make it through the first 48 hours, but if I did I would never make it to my first birthday. Over the last year and a half I have given my mommy and daddy some realy big scares. Last November I cought RSV and had to be placed into a coma on a Vent for 28 days because my lungs kept colapsing. Im a fighter though. Im doing really good right now. I proved those doctors wrong! We moved from Dallas to Florida in February of 2005 so that I could be treated by the Tampa Shriners. Every 8 weeks they give me a 3 day IV treatment that cost about $850 each. This treatment is called Pmaidronate (Pam). Pam helps my bones to get stronger. As I get stronger it helps to drcrease the fracture rate, it makes me more mobile, and it helps to controle the pain in my bones. It helps me alot. In Texas where I was born, they told my Mommy and Daddy that I was not going to make it and the Pam was a very expensive treatment so I was not a canidate. My mommy would not settle for that answer and she looked for someone who would help me. She found the Shriners. They said my treatments would be free if I came to them. My mommy was so happy that she had found someone who gave her hope. My Daddy packed up everything the things in out house and when His truck was full he loaded me, my 2 brothers and my sister up in my mommys van and we left for Florida leaving everything else behind. It was a long drive! |
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My website will be full of information about me and OI, but like me it is still growing. As I get bigger and change my mommy will keep changing the picture and add to my story. If you keep checking back you can learn more about me and watch me grow! Please sign my guest book so that I can read it when I get bigger! |
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